Karin Jongsma is an assistant professor of medical ethics at the Julius Center of Utrecht University Medical Center, the Netherlands and a Post-doctoral fellow at the department of Medical Ethics and History of Medicine in Göttingen, Germany. She was also our Caroline Miles visiting scholar in November 2017.
She works with Prof. Dr. Annelien Bredenoord (Utrecht) and Prof. Dr. Silke Schicktanz (Göttingen). Her research focuses on who should have a say in decision-making and representative practices, and she is particularly interested in digital health.
Apps and big data are increasingly used to track, analyse and predict health and health behaviour via smartphones, wearables and via online behaviour. Health care has a history of failed IT investments, and health research has a reputation of being expensive to innovate in, but commercial tech-companies such as Google, Facebook and Apple have succeeded in creating momentum towards a digital change. These companies have developed and implemented technologies that offer innovative ways for collecting, storing and analysing complex and rich health-related data. This data driven research and care may be referred to as digital health. The rising attention for big data and digital health has come with high expectations and is supposedly paradigm-changing. It is hoped that the possibilities of doing research and monitoring patients and not yet patients will create new ways of predicting, treating and preventing illnesses (eg Topol 2015), but digital health will simultaneously create new risks and harm and will shift the dynamics of health research and health care.
Continue reading “Do traditional bioethical solutions suffice in times of digital health?”
We had a great talk here at Ethox a few weeks ago by Dr Steve Clarke, on sacred values and the sanctity of life. Steve is a Senior Research Associate in the Oxford Uehiro Centre for Practical Ethics and a Senior Research Fellow in the Centre for Applied Philosophy and Public Ethics, Charles Stuart University.
If you missed this talk, you can listen again here…
Listen to Dr Steve Clarke’s talk here
Continue reading “Sacred Values and the Sanctity of Life”
Morten Fibieger Byskov is a postdoctoral researcher with the department of Communication, Philosophy, and Technology at Wageningen University & Research, the Netherlands, and our current Caroline Miles visiting scholar.
Multi-drug resistant organisms (MDROs), or antimicrobial resistance (AMR), pose a dire threat to individual and public health. Not only is AMR a danger to vulnerable individuals who require antibiotic treatment, but the over- and misuse of antibiotics also threatens the effectiveness of antibiotics for future generations. As such, AMR presents a unique problem for public health ethics and healthcare ethics that should ideally address ethical issues at both the public and individual level.
Continue reading “The Ethics of AMR Carriership”
Angeliki Kerasidou and Patricia Kingori, Ethox Centre
On Saturday the 10th of August, the Nobel-prize winning physicist Steven Hawking, addressed an audience at the Royal Society of Medicine. Over his illustrious career Hawking has become used to taking in public about his work in mathematics and physics. On this occasion however, he ceased the opportunity to draw attention to his lifelong experience of the NHS. His address, which was also published in a daily newspaper the day before, raised concern about recent NHS reforms and the “political decisions” that have brought it to the point of crisis. He listed underfunding, public sector pay cap, new junior doctor contracts, removal of student nurses’ bursary and ceaseless drive towards privatisation as hindering the NHS from providing high quality care. In response, war of words and statistics ensued with Jeremy Hunt accusing Hawking of “pernicious falsehoods”. Where facts and figures can ping-pong between opposing sides and become political instruments to justify particular actions, personal experiences of the reforms can help elucidate the reality behind the numbers. Continue reading “Mr Hunt, weekend effect aside, the NHS is in crisis – both patients and staff experience it”
Matthew McCoy, Postdoctoral Fellow in Advanced Biomedical Ethics, Penn University
Earlier this year, an expert committee convened by the U.S. National Academies of Science and Medicine published a report on the science, ethics, and governance of human genome editing. Peppered throughout the report’s 200-plus pages were repeated references to the need for more “public discussion” about ethical issues raised by human genome editing.
Continue reading “What are we talking about? Clarifying calls for “public discussion” about emerging technologies”
Kristine Bærøe, Associate Professor at the Department of Global Public Health and Primary Care, University of Bergen
A couple of months ago a new Research Ethics Act was implemented in Norway. The rationale for replacing the preceding regulation was to strengthen legal responsibilities of researchers and institutions for promoting acceptable research . According to the new regulation, researchers are held legally responsible for ensuring that they ‘act with caution to ensure that all research is conducted according to recognised research ethical norms’ . At the same time ‘institutions are responsible for: a) necessary training of candidates and employees in recognised research ethical norms and b) that everyone who conducts or participates in the research is familiar with recognised research ethical norms’ . The lawmakers have explicitly left it to the researcher community to define what is covered by ‘recognised norms’ , but implicitly the community will also have to define what should go into ‘necessary training’.
Continue reading “What is ‘necessary training’ in health-related research ethics?”
Suzanne Metselaar, Dept. of Medical Humanities, VU University Medical Center, Amsterdam, and Gerben Meynen, Dept. of Philosophy, VU University, Amsterdam
Since 2013, a one-week Winter School at the Ethox Center is part of our master programme Philosophy, Bioethics, and Health (PBH). PBH is an interdisciplinary, two-year MA-programme of the Dept. of Philosophy of VU University in collaboration with the Dept. of Medical Humanities of VU University Medical Center in Amsterdam. Students describe the visit to Ethox as a great learning experience: it is seen as the highlight of our Master programme. And the beautiful scenery and history of Oxford are certainly a great bonus!
Continue reading “Winter School @Ethox: “A most exciting experience!””